I am so honored, as a grandmother of remarkable young man who just happens to have Type 1 Diabetes, to be a part of this advocacy process where what we do and what we say and the relationships we cultivate with our representatives can and will have an impact on the lives of all of our loved ones and future generations as well.
I have just come home from being in Washington DC with approximately 180 other empowered JDRF Advocates who converged on Capitol Hill Monday and Tuesday. My husband and I delivered almost 60 letters to our congressmen. These letters were from families affected by Type 1 Diabetes. They were written by children with Type 1, adults who have been living with Type 1, parents of Type 1’s, grandparents of Type 1’s, friends of Type 1’s and advocates who just understand how important a cure for this disease is and are reminding their representatives that their help is needed to ensure long and healthy lives for our loved ones.
In addition to hand delivering these letters, we have asked our congressmen, congresswoman and senators to please sign on to a letter to FDA Commissioner Hamburg highlighting the need for guidance on the artificial pancreas. This letter encourages the FDA to quickly consider the research framework submitted by JDRF and other leading experts to ensure this process keeps moving forward and these new technologies will be furthered tested as quickly as possible and made available as soon as possible. The artificial pancreas has already been tested in hospitals. Outpatient testing is the next step in the process and we can not wait years to get these trials started.
Part of our training this weekend also included sessions by bloggers who explained how being able to connect to others with similar struggles, as well as sharing their triumphs and just day to day thoughts, had huge impacts on their lives and the lives of their fellow bloggers. As a JDRF advocate and a grandparent of a Type 1 Diabetic, I don’t want to be left behind.
With the help of Scott and Kerri, who were so awesome and agreed to “get me started” I am going to attempt to blog and be a part of the DOC (Diabetic Online Community)!