For almost a month now, we have been asking our congressmen and senators to sign a letter to the commissioner of the FDA urging them to not delay the outpatient testing of the Artificial Pancreas. Here in Orange County, CA, we have 5 congressional districts and all 5 of them have always presented us with quite a challenge to get them on board with issues concerning diabetes. As JDRF advocates, many of us have answered JDRF’s call to action and emailed our representatives telling them how important this issue is to us.
Thursday I received word that 2 of our Congressmen had signed the letter, District 40’s Ed Royce and District 46’s Dana Rohrabacher!!! As the advocate leader for our chapter, I sent out an email to the advocates in their respective districts letting them know that their representatives had listened to their request!
One of the advocates, sent a thank you to Ed Royce and cc’d me. I thought the letter was so beautifully written and held such a powerful message, I asked if it would be alright to share and thankfully she said yes!
Our only daughter has suffered from type 1 diabetes for ten years now; she is currently 11 years old. The fact that you signed the letter supporting the artificial pancreas makes a direct difference to our family. The possibility of this type of management for her diabetes is as close as, I feel, we may get to a cure in her lifetime. Maybe I have an amazing surprise in store for me one day and there will be a cure, but until then an artificial pancreas is the closest I can hope to have for her.
Your own mother probably thought the same thing about you when you were young, that you would help the world one day. I am writing today to let you know that you just helped us, with your understanding and concern for our child’s future, and we are forever grateful.
If he reads her thank you, I guarantee you he will not forget what she said!
Each one of us can make a difference…Together we will find A Cure..
If you have not yet sent your letter to your Congressman, THE DEADLINE IS TODAY 4/12 Please help us make a difference! follow this link: http://takeaction.jdrf.org/apfdacalls