Monthly Archives: May 2011

OPEN YOUR EYES TO DIABETES

Last week I attended a JDRF Corporate Breakfast hosted by Rob Savage, the COO of Taco Bell and father of a son with Type 1 Diabetes.

Rob is the corporate chair for our Orange County JDRF’s Walk to Cure Diabetes coming up in November.  We had a wonderful buffet breakfast.  Rob and several others spoke about how diabetes has affected their lives.  One of our JDRF mom’s read a moving poem by  fellow blogger,  Gary Hempleman.   We were then updated on the progress of some of the JDRF funded research going on, and in conclusion,  they played a great video that shares a little about what it’s like living with diabetes.  It  seemed to make an impression on most all of the people in the room.

The event lasted less than an hour and was a big success.  Through this breakfast JDRF was able to engage new organizations and corporations to join in our quest to find better treatments for diabetes and a CURE!

Our local JDRF chapter just released that video on youtube.  Thought you all might like to view it as well.   http://bit.ly/kr9Ukk

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Thank you for our Freedom

Please take a moment today to remember all of the men and women who have died protecting  the freedom that most of us take for granted.

TAPS

Day is done,

gone the sun,

From the hills,

from the lake,

From the skies.

All is well,

safely rest,

God is nigh.

Go to sleep,

peaceful sleep,

May the soldier

or sailor,

God keep.

On the land

or the deep,

Safe in sleep.

Love, good night,
Must thou go,
When the day,
And the night
Need thee so?
All is well.
Speedeth all
To their rest.

Fades the light;
And afar
Goeth day,
And the stars
Shineth bright,
Fare thee well;
Day has gone,
Night is on.

Thanks and praise,
For our days,
‘Neath the sun,
Neath the stars,
‘Neath the sky,
As we go,
This we know,
God is nigh.

TO EACH MAN AND WOMAN THAT DIED SERVING OUT COUNTRY
AND THE FAMILIES THEY LEFT BEHIND
THANK YOU FOR YOUR SACRIFICE!

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Diabetes Etiquette for Type 3’s!

Diabetes Etiquette

My last post was about the awesome event that our local chapter put on called A Day of Hope and Health!   One of the presentations from that event was on the psychological effect diabetes can have on, not only the one with diabetes, but their loved ones as well!  Susan Guzman of the Behavioral Diabetes Institute gave a great talk and both my husband and I really enjoyed listening to her and what she had to say.

There was  literature available about her institute, as there usually is at these types of events.. one of which  was a very small  (business card size) brochure that really hit home for me!  It was called “Diabetes Etiquette for people who DON”T have diabetes”!

Since, as you know, I don’t have diabetes, I read it and after reading it, I knew I had to share it with my friends on the DOC!  If you all have seen this before, I apologize, but if not, I thought you might be able to share with your friends and loved ones.  It, once again, sheds more light on how what we say and do affects those of you that have to live 24/7  with Type 1 Diabetes.

  1. Don’t offer unsolicited advice about my eating or other aspects of diabetes.  You may mean well, but giving advice about someone’s personal habits, especially when it is not requested, isn’t very nice.  Besides, many of the popularly held beliefs about diabetes (“you should just stop eating sugar”) are out of date or just plain wrong.Go to fullsize image
  2. Do realize and appreciate that diabetes is hard work.  Diabetes management is a full-time job that I didn’t apply for, didn’t want and can’t quit.  It involves thinking about what, when and how much I eat, while also factoring in exercise, medication, stress, blood sugar monitoring, and so much more – each and every day.View Image
  3. Don’t tell me horror stories about your grandmother or other people with diabetes you have heard about.  Diabetes is scary enough, and stories like these are not reassuring!  Besides, we now know that with good management, odds are good you can live a long, healthy and happy life with diabetes
  4. DO offer to join me in making healthy lifestyle changes.  Not having to be alone with efforts to change, like starting an exercise program, is one of the most powerful ways that you can be helpful.  After all, healthy lifestyle changes can benefit everyone!
  5. DON’T look so horrified when I check my blood sugars or give myself an injection.  It is not a lot of fun for me either.  Checking blood sugars and taking medications are things I must do to manage diabetes well.  If I have to hide while I do so, it makes it much harder for me.
  6. DO ask how you might be helpful.  If you want to be supportive, there may be lots of little things I would probably appreciate your help with.  However, what I really need may be very different than what you think I need, so please ask first.View Image
  7. `DON”T offer thoughtless reassurances.  When you first learn about my diabetes, you may want to reassure me by saying things like, “hey it could be worse;  you could have cancer!”  This won’t make me feel better.  And the implicit message seems to be that diabetes is no big deal.  However, diabetes(like cancer) is A BIG DEAL.
  8. DO be supportive of my efforts for self-care.  Help me set up an environment for success by supporting healthy food choices.  Please honor my desiciion to decline a particular food, even when you really want me to try it. You are most helpful when you are not being a source of unnecessary temptation.Temptation
  9. DON”T peek at or comment on my blood glucose numbers without asking me first.  These numbers are private unless I choose to share them…  It is normal to have numbers that are sometimes too low or too high.  Your unsolicited comments about these numbers can add to the disappointment, frustration and anger I already feel.Bart Peeking
  10. DO offer your love and encouragement.  As I work hard to manage diabetes successfully, sometimes just knowing that you care can be very helpful and motivating.First summer love

If you would like to learn more you can visit their website at http://www.behavioraldiabetes.org

Behavioral Diabetes Institute

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A Day of Hope and Health!

Our local JDRF chapter held a free event called A Day of Hope and Health on Sunday.  It was a great event and gave us the chance to meet lots of families affected by Type 1 as well.  It was great to see so many adults with Type 1 attend, as well as kids, parents, grandparents, spouses and doctors and health care professionals (and don’t let me forget Nick, the medical alert service dog!).

The event started with registration and a Vendor Fair.  As the JDRF Advocacy Team Leader, I was hoping to encourage attendees to sign up to become advocates and also hoping that I’d get to meet some of the existing advocates so that I could put faces to some of their names!

It was also great to be able to meet with all of the different meter and pump companies  and be able to compare their wares.  To have some of the other organizations there that help to provide support for Diabetics was also a big plus..Lord knows, we  need all the help we can get.

As the presentation got underway, some of our awesome volunteers took the children (all 60+ of them) to play games and make crafts so that the adults could listen to the presentations!!!

The keynote speaker was Susan Guzman, PhD, who talked about The Emotional and Psycho-Social Effects of Type 1 Diabetes.  She was an awesome speaker and addressed many  issues that most of us could relate to on one level or another.  She spoke about the effects of managing diabetes as a Child, Teenager, and Adult with Type 1,  as well as being the parent, sibling, grandparent or other loved one of a person with Type 1.  She brought up many aspects of living with Type 1 but especially the fact that depression is very common in Type 1’s and talked about some why’s along with helpful tips to avoid depression. Some of the issues she covered were:

  • Diabetes burnout and how there needs to be resources readily available for helpDiabetes Burnout: What to Do When You Can't Take It Anymore
  • Focus is usually on what type 1’s do wrong and not what they do right
  • She described depression as “My Give A Damn Is Broken”!!
  • Exercise is extremely important in treatment of depression
  • Well managed Diabetes is not just A1C, but also cholesterol and blood pressure numbers as well

We were also given research updates by Dick Allen (who among many other accomplishments and positions, serves on the board of JDRF International and also has a grand daughter with Type 1) and Anne Grey (who is JDRF’s National Director of Leadership Giving).

  • They stressed the importance that Advocacy has on funding research
  • A Cure for newly diagnosed Type 1 will be different than the cure for someone that has had it for years
  • JDRF is funding research in all areas
  • Even if someone has had Type 1 for 30 years..pancreas still has beta cells
  • There is promising research being done with nano particles delivering drugs or vaccines, micro encapsulation, and antigen specific triggers for Type 1

I attempted to  tweet as they spoke…I’m not sure it made any sense to anyone that read it…and my husband saw me tweeting and thought I was just bored and playing a game on my phone…Yikes!!!   I sure hope no one else saw me and felt that way!

After the presentation was over, everyone was given a card that could be used for a free lunch,  arcade games and rides at a local amusement park.  It was a great day and not only did we sign up over 40 new advocates I got to meet several of the existing advocates who had been so helpful in obtaining the signatures of their Congressmen on JDRF’s letter to the FDA!!

Thank you Cindy and Michelle for all your hard work in putting this great event together!  IT WAS FANTASTIC!!

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Our Walk to Cure Diabetes

Every year, since my Grandson was diagnosed,  we walk with the Juvenile Diabetes Research Foundation in hopes of funding research to find a cure.  We will continue walking until  a cure is found, but while we are on this journey…WE WILL MAKE THE MOST OF IT !!

Our first walk

My precious ones at 2005 walk

Awesome Team Strike Out Diabetes!!

D follows everywhere...Grr

Our sneaker wagon


Oh my!!

Crusin'

Walk at UCI

Havin' some fun!

Me and my best bud's!! Oh and Elmo too!

Winner, winner, chicken dinner!!

With a little help from my friends!!

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We Will Stop You!

I really, really have a hard time giving diabetes credit for anything.  However, that being said….

Because of this insidious  disease that sneaks into our homes and  steals our pancreas, our innocence, our time, our money, our health, our sleep, our blood, our peace of mind,  and on and on……

  • I have made lots of new friends
  • I have been uplifted by the generosity of people
  • I have learned that one person can make a difference
  • I have learned that if you don’t ask…you probably won’t get
  • I have been to Washington DC twice for JDRF’s Government Day
  • I have learned to blog
  • I have learned I can still speak to a room full of people
  • I have fallen in love with the DOC
I do thank you, Diabetes for these things you have left in return for what you have taken, but we WILL find how you get in and STOP you in your tracks very soon and you will have to return everything you have taken from us.  I PROMISE YOU THAT!

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#4 I hate you Diabetes

Diabetes…I hate you for what you do and what you take from all of those you have come to live with, but I will never forgive you for coming to live with my grandson.

I hate the day he was diagnosed and we were told you would be with him 24/7 for life, unless a cure was found

I hate that because of you,  his fingertips are and always will be calloused and full of holes

Go to fullsize image

I hate his Diabetes highs, his Diabetes lows and his Diabetes everything in between

I hate that because of one stupid coach he almost died

I hate that most people don’t understand how much work it takes for him to survive each day

I hate that he can’t eat whatever he wants without first deciding if  having another shot is worth it

I hate that when he does eat…he has to be a mathematician and a clairvoyant

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I hate that he can never forget, even for a moment, he has you on his back

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I hate that everytime I see a child run to the bathroom I think he might have diabetes

but mostly …..

I hate that it was him and not me.  I would have gladly given you my pancreas…Why can’t you take mine and give his back to him?

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Filed under D-Blog Week, Grandchildren, Uncategorized