Tag Archives: daughter

Strike Out Diabetes!

Oh my gosh, have I have a major senior moment!!  As I was writing about all the activities that the Silly Hats and Caps have been up to, I realized that I had totally forgotten to tell about our very first event!

Silly Hats & Caps was created around April of last year.   We had started meeting every Tuesday morning for breakfast and  we had been talking about what we might be able to do to help spread awareness of Diabetes, the need for a cure and how we could bring more people with diabetes together (as you know, there is strength in numbers!).

One morning I got a phone call from my girlfriend and she asked me if I had seen the  latest GROUPON offer!  I hadn’t, but I went to my computer and opened it while I was on the phone with her and there it was!   A great opportunity for a low cost get together, a 2 for 1 bowling package and a really great deal.  So each of us 3 original Silly Hat & Caps couples,  bought 2 groupons and we were on off and running!

From the very beginning of our family’s “D Journey” the name of our family walk team has been “Strike Out Diabetes”.  Strike out as in baseball, but hey…it works for bowling too!

Our local chapter shared the details of our event in their newsletter and posted it on facebook and we, of course, shared the date with our friends and family.

The day finally came…we took our groupons, our helium balloons, some JDRF literature and off to the bowling alley we went!

I’m sorry to say we didn’t have one person other than our 3 families show up for the event…but boy did we have fun!

All three of us Silly Hats & Caps couples had 3 generations represented!!  How very cool is that!! Us grandparents, our children and our grandchildren had a blast!

And in addition to that, what made it all worthwhile????  We’d been bowling about 20 minutes and a man had seen our JDRF balloons and came over to ask about our group.  He approached my daughter in law and said “I saw the balloons..you’re with JDRF? We’re having my son’s birthday party here…my son has Type 1 .”   That was her opening for further dialogue!!  She introduced herself to him and his wife, met the birthday boy and shared with them, her story of living with a child with Type 1 Diabetes.   Robby  met them as well, and told the family how diabetes has not held him back from doing anything he wants, including playing college baseball at a division 1 school!  He and his mom also told them what an important role JDRF has played in our lives since his “D”iagnosis!

Our first official event and we were able to achieve our goal…Have fun while laughing, chatting and helping spread awareness of Diabetes and the need for a cure!  And in addition, we were able to introduce another family to JDRF!!

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Filed under Advocacy, Grandchildren, Silly Hats & Caps, Uncategorized

A Touching Thank You To to Congressman Royce

For almost a month now, we have been asking our congressmen and senators to sign a letter to the commissioner of the FDA urging them to not delay the outpatient testing of the Artificial Pancreas. Here in Orange County, CA, we have 5 congressional districts and all 5 of them have always presented us with quite a challenge to get them on board with issues concerning diabetes.  As JDRF advocates, many of us have answered JDRF’s call to action and emailed our representatives telling them how important this issue is to us.

Thursday I received word that 2 of our Congressmen had signed the letter, District 40’s Ed Royce and District 46’s Dana Rohrabacher!!!  As the advocate leader for our chapter, I  sent out an email to the  advocates in their respective districts letting them know that their representatives had listened to their request!

One of the advocates, sent a thank you to Ed Royce and cc’d me.  I thought the letter was so beautifully written and held such a powerful message, I asked if it would be alright to share and thankfully she said yes!

Mr. Royce,

Our only daughter has suffered from type 1 diabetes for ten years now;  she is currently 11 years old.  The fact that you signed the letter supporting the artificial pancreas makes a direct difference to our family.  The possibility of this type of management for her diabetes is as close as, I feel, we may get to a cure in her lifetime.  Maybe I have an amazing surprise in store for me one day and there will be a cure, but until then an artificial pancreas is the closest I can hope to have for her.

Your own mother probably thought the same thing about you when you were young, that you would help the world one day.  I am writing today to let you know that you just helped us, with your understanding and concern for our child’s future, and we are forever grateful.

Take care,

Marla Dorsey

If he reads her thank you, I guarantee you he will not forget what she said!

Each one of us can make a difference…Together we will find A Cure..

If you have not yet sent your letter to your Congressman, THE DEADLINE IS TODAY 4/12 Please help us make a difference!  follow this link:   http://takeaction.jdrf.org/apfdacalls

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Filed under Artificial Pancreas, Rohrabacher, Royce, Thank you, Uncategorized