Tag Archives: Grandchildren

Strike Out Diabetes!

Oh my gosh, have I have a major senior moment!!  As I was writing about all the activities that the Silly Hats and Caps have been up to, I realized that I had totally forgotten to tell about our very first event!

Silly Hats & Caps was created around April of last year.   We had started meeting every Tuesday morning for breakfast and  we had been talking about what we might be able to do to help spread awareness of Diabetes, the need for a cure and how we could bring more people with diabetes together (as you know, there is strength in numbers!).

One morning I got a phone call from my girlfriend and she asked me if I had seen the  latest GROUPON offer!  I hadn’t, but I went to my computer and opened it while I was on the phone with her and there it was!   A great opportunity for a low cost get together, a 2 for 1 bowling package and a really great deal.  So each of us 3 original Silly Hat & Caps couples,  bought 2 groupons and we were on off and running!

From the very beginning of our family’s “D Journey” the name of our family walk team has been “Strike Out Diabetes”.  Strike out as in baseball, but hey…it works for bowling too!

Our local chapter shared the details of our event in their newsletter and posted it on facebook and we, of course, shared the date with our friends and family.

The day finally came…we took our groupons, our helium balloons, some JDRF literature and off to the bowling alley we went!

I’m sorry to say we didn’t have one person other than our 3 families show up for the event…but boy did we have fun!

All three of us Silly Hats & Caps couples had 3 generations represented!!  How very cool is that!! Us grandparents, our children and our grandchildren had a blast!

And in addition to that, what made it all worthwhile????  We’d been bowling about 20 minutes and a man had seen our JDRF balloons and came over to ask about our group.  He approached my daughter in law and said “I saw the balloons..you’re with JDRF? We’re having my son’s birthday party here…my son has Type 1 .”   That was her opening for further dialogue!!  She introduced herself to him and his wife, met the birthday boy and shared with them, her story of living with a child with Type 1 Diabetes.   Robby  met them as well, and told the family how diabetes has not held him back from doing anything he wants, including playing college baseball at a division 1 school!  He and his mom also told them what an important role JDRF has played in our lives since his “D”iagnosis!

Our first official event and we were able to achieve our goal…Have fun while laughing, chatting and helping spread awareness of Diabetes and the need for a cure!  And in addition, we were able to introduce another family to JDRF!!

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Filed under Advocacy, Grandchildren, Silly Hats & Caps, Uncategorized

Meeting with some of my Hero’s!!

As most of you know..I am a grandmother and a Type 3 (once removed)!  That is..I do not have diabetes, my children do not have diabetes, it is my oldest grandson that was diagnosed with  Type 1 Diabetes!

As any of my friends and family will tell you, I am the definition of a Mother Hen!  Not necessarily a good thing, but none-the-less it is a part of who I am!!   “D” showed up 7 years ago and threatened a member of my family..  “D” did not just come in and  steal a part of my grandson (his pancreas), it took a piece of all of us and forever changed our family!  I HAD TO do what I could to make “D” give it back!

I volunteered with JDRF (Juvenile Diabetes Research Foundation) and started out just participating in the Walk to Cure Diabetes every year.  Then I became a JDRF Advocate and periodically wrote to my congressman asking him to please do what he could to make sure that diabetes research is funded so that a cure can be found as soon as possible.  And 2 years ago I was asked to be the Advocacy Leader.  Saying “no” is a very hard thing for me to say and thank goodness.  Being the JDRF Advocacy Leader I was invited to attend their Government Day in Washington DC.

And so it began….

At this year’s Government Day, I was introduced to the Diabetes Online Community.  Something I didn’t even know existed!  Listening to all of those young men and women talk about the DOC and the support it gives to its members , I knew I had to learn more.  I think it kind of started as a joke, but somehow this old gramma (thanks to Scott and Kerri) left DC that week with my own blog site and twitter account!

The DOC not only offers support to each other that is beyond description, it is so much more.  It is, in almost every sense of the word, FAMILY!  The members of the DOC laugh together, they cry together, they educate each other, they all love unicorns and cupcakes, they advocate, they vent their frustrations without being judged, they are there for each other 24/7, they encourage each other during tough times and they celebrate the victories!

They live their lives, day in and day out, 24/7 with no vacations from “D” and shout “YOU CAN DO THIS!”  with pride!  Each and every one of you living with diabetes are my heroes!

I am so grateful to George http://ninjabetic.squarespace.com

for inviting me to a D meet-up last Saturday. He is going to be speaking to some of our advocates next month about the DOC and I am so excited!

I got to see Scott http://scottsdiabetes.com/

and not only thank him again for setting me up with my own blog and twitter accounts, but I got to get one of his famous “BIG HUGS”!  He is for sure, one of my biggest heroes!!!

And I got to meet Jenny and her husband http://web.me.com/wyldceltic1

who loves Mac’s, her dogs and music!  She definitely has all things “APPLE”!

and last but not least…..

Brad Slaight aka “Meter Boy” http://www.captainglucoseandmeterboy.com/

who kept us laughing the whole time!  (Not to mention he is “half the man he used to be”!)

Thank you all for your courage, commitment and dedication to the DOC and  for making me feel so welcome at your table!

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Filed under Diabetes online Community, Government Day 2011, Grandchildren, JDRF Walk to Cure, Spreading Awareness, Thank you, Uncategorized

Sister’s Tender Moment!

This was a very big week for our family.  Our first grandchild graduated from high school yesterday.  He graduated with honors,  an academic scholarship and an athletic scholarship to play baseball for the college that was his Number One Choice!   He did this with NO HELP FROM DIABETES OR CELIAC DISEASE!

His parents were having a graduation party at one of his favorite Mexican Restaurants and my grand daughter (his little sister) called me and asked if I would help her make a cake for the occasion!  No brainer, of course I would love to help!

Mind you, most of the time, the two of them can not stand to be in the same room with each other!!  She says  “He gets all the attention….it’s always about him” . He is always teasing her and says “She is so spoiled, she gets whatever she wants” and so on and so on!  You know, that whole sibling rivalry thing!!

So anyway, she comes over and begins to tell me what she wants to make for her big brother.  And she melts my heart!

You see, he has not been able to eat cake like everyone else since he was 11 years old and in addition to his Type 1 diabetes, was diagnosed with Celiac Disease.   Whenever we have birthdays or other events where cake is served we alway make sure he has a gluten free cupcake or some other gluten free dessert.  But because this is a really special day for him…his sister wants to make him the gluten free cake and make regular cupcakes for everyone else!!  Oh, and not just any old gluten free cake but a 4 tiered gluten free cake!!   I am choking back the tears by now!  At that moment, I couldn’t be more proud of her!  What a very special grand daughter I have!

The day of the graduation party was also our third grandchild’s birthday and she wanted to make sure she made him something as well.  So after I pick all of them up from their respective schools,  I take her and our 2 younger grandsons to the cake decorating store and we pick out decorations for her “vision”  and our birthday boy picks out what he wants on his special cupcake!!   She and I then spend the evening baking all four gluten free cakes and we bake 18 regular cupcakes.  She has heard that it’s easier to frost if we freeze the cakes first…after the last of the four cakes has cooled we put them in the freezer at about 11pm and we head off to bed!  (She’s spending the night because she has no school the next day and wants to get an early start to the decorating!)

So up we get and one by one we remove the layers from the freezer and frost them and stack them on top of each other!  Then the cupcakes are frosted and a little frosting is put on the bottom of the wrappers so they stay secured to where she puts them.   Finally…she is ready to add the decorations that took her over an hour to pick out!

I’ll let you decide for yourself…But I doubt that anyone would be able to buy a more beautiful graduation cake or a cake made with more love than this one (let alone a gluten free one)!!

This Grandmother is so very proud of all of her grandchildren.  Being a grandma is the best thing in the whole world!

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Filed under Baseball, Grandchildren, Sports

Our Walk to Cure Diabetes

Every year, since my Grandson was diagnosed,  we walk with the Juvenile Diabetes Research Foundation in hopes of funding research to find a cure.  We will continue walking until  a cure is found, but while we are on this journey…WE WILL MAKE THE MOST OF IT !!

Our first walk

My precious ones at 2005 walk

Awesome Team Strike Out Diabetes!!

D follows everywhere...Grr

Our sneaker wagon


Oh my!!

Crusin'

Walk at UCI

Havin' some fun!

Me and my best bud's!! Oh and Elmo too!

Winner, winner, chicken dinner!!

With a little help from my friends!!

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Filed under Baseball, Grandchildren, JDRF Walk to Cure, Uncategorized

#4 I hate you Diabetes

Diabetes…I hate you for what you do and what you take from all of those you have come to live with, but I will never forgive you for coming to live with my grandson.

I hate the day he was diagnosed and we were told you would be with him 24/7 for life, unless a cure was found

I hate that because of you,  his fingertips are and always will be calloused and full of holes

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I hate his Diabetes highs, his Diabetes lows and his Diabetes everything in between

I hate that because of one stupid coach he almost died

I hate that most people don’t understand how much work it takes for him to survive each day

I hate that he can’t eat whatever he wants without first deciding if  having another shot is worth it

I hate that when he does eat…he has to be a mathematician and a clairvoyant

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I hate that he can never forget, even for a moment, he has you on his back

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I hate that everytime I see a child run to the bathroom I think he might have diabetes

but mostly …..

I hate that it was him and not me.  I would have gladly given you my pancreas…Why can’t you take mine and give his back to him?

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Filed under D-Blog Week, Grandchildren, Uncategorized

Mud in Your Eye!!

Diabetes bloopers #3

I am a grandmother of an eighteen year old young man with Type 1 Diabetes.   He was diagnosed when he was 11 and luckily he has always been able to tell when his blood sugars were low.  However,  when his blood sugars are high he doesn’t necessarily feel it right away.   He has always been an even-tempered and very respectful child,  but we quickly learned when his blood sugar is high, he gets downright ornery!!   So whenever he starts acting up or getting emotional we make sure he tests his bs numbers and 9 times out of 10, his numbers are off the charts.

I have, however, learned that when we are out in public and I think he might need to test…unless I want everyone within shouting distance to give us “the look” and chance an immediate search, I should not ask “ARE YOU HIGH?”!!

Being a product of the 60’s, music is a big part of my memories and whenever I think of being high (believe it or not), I think of this tune…Not about being high on drugs or alcohol, or because of the need of insulin, but because of the joy a smile can bring…Hope you enjoy it too and whenever you’re fighting a wicked high you’ll sing a little bit about scotch and soda, MUD IN YOUR EYE DIABETES!!

If you’ve never heard of the Kingston Trio or heard them sing “Scotch and Soda” you can visit a piece of the sixties here:

http://www.youtube.com/watch?v=4Nc2GWytR0E

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Filed under D-Blog Week, Grandchildren, Uncategorized

Breath Test for Diabetes

Blog post #2 

Dear Dr. Galassetti,

Back in 2008, my grandson participated in studies you were conducting at UCI Medical Center.  That research was being done in hopes of eliminating skin punctures for people with diabetes.

As you know, our loved ones, who have diabetes have to test their blood sugars 5 to 10 times a day by pricking their fingers.  You believed that you had the answer to making that process less painful.  This method of measuring blood sugar levels would be one more step in making life just a little easier for them while they wait for their cure.

You collected breath samples from young diabetic athletes while blood sugar levels were high and again as levels fell after insulin was administered. Using a technique developed to test air pollution, you and your researchers detected high concentrations of methyl nitrate — a byproduct of the damage to body tissue — when blood sugar levels are too high and as the blood sugar was corrected, the methyl nitrate levels in their breath went down.

Your technology would allow all people with diabetes to be able to test their blood sugar levels by breathing into a device rather than having to draw blood!  You were encouraged by your results.  But you also said it may take up to 10 years to bring this to market.  UGH!!

Please let us know where you are at in this exciting technology and also let us know if there is anything we can do to help bring it to market and made available for our loved ones!  Do we need to give the FDA another push?  We are getting pretty good at that!  Last month we (JDRF and DOC Advocates) banded together and successfully convinced congress to sign a letter to the FDA urging them to approve outpatient testing of the Artificial Pancreas as quickly as possible!  We’re hoping that out patient testing of the Artificial Pancreas will start this summer!

While certainly not a cure, your device would make the wait for a cure just a little easier and perhaps convince people to test more often.  Just think…   No more test strips!  No more Lancets!  No more calloused fingers!  No more punctures!

Thank you,

Type 1 Advocate Gramma

If you would like to see the short video telling about that research testing, which(by the way) features my grandson, along with bit parts from my grand daughter, son and daughter-in-law..please follow this link.

Breath Test For Diabetes

I’m sorry I can’t figure out how to bypass the advertisements…but it is only 15 seconds and then goes to the feature.

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Filed under Baseball, D-Blog Week, Grandchildren, New Technology, Sports