Tag Archives: mother

Exactly What Does Being an Advocate Mean?

 What is a JDRF Government Relations Advocate?


Who are they?

Juvenile Diabetes Research Foundation (JDRF) Advocates are people just like you and me who want to make sure that diabetes research stays at the top of the  government’s funding agenda.  They are moms, dads, brothers, sisters, grandparents.  Some are rich and some are poor and most of them are somewhere in between.  They come from all different walks of life.  Some have years of education and others haven’t finished high school.  But they all know that researchto find a cure for diabetes is a very important issue and must continue to have money allocated for that research.

JDRF funds much of that research but the United States Government is the world’s largest funder of biomedical research – billions of dollars are allocated every year to its primary research establishment, the National Institute of Health (NIH). Elevating diabetes research to the top of the federal government’s funding agenda – and keeping it there until a cure is found – is JDRF’s primary advocacy goal

What do they do?

All it takes to become a JDRF Advocate is to sign up.  Then every now and then (maybe 3 or 4 times a year) you get an email that asks you to call or email your elected officials.  JDRF gives tells you who to get in touch with, gives you the link or script and all it takes is a minute or two!  My first phone call to my congressman’s office I WAS TERRIFIED!

 But once I made the call, I realized that the person on the other end of the phone was no different than you or me…they were there to answer the phone and give a message to their boss!   All I was doing was leaving that message…

Why be an Advocate?

Why?  Why not?  The only way our loved ones will ever be able to take a vacation from this crappy disease is if a cure is found!  If all it takes to make a difference in speeding that cure is an email or a phone call, why would we not become an advocate?  

Because one phone call really can make a difference.

One email really can make a difference.

Because one vote really can make a difference!

Making phone calls, sending emails and visiting elected officials is so easy, compared to what our loved ones live with every day.  If we can put face to diabetes and change the vote of one congressman or senator…it could make the difference in funding that one research project that would have found the cure!!

To become a JDRF advocate and MAKE A DIFFERENCE please follow this link and sign up today! http://takeaction.jdrf.org/site/PageServer?pagename=Registration_Page

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Filed under Advocacy, Promise to Remember, Thank you, Uncategorized

Set Free

I started my morning reading a beautiful post from Our Diabetic Life in 3D titled ” Diabetes is a Sailboat”.  http://www.ourdiabeticlife.com/2011/07/diabetes-is-sailboat.html  It’s a story about how having a child diagnosed with diabetes is like putting your child in a sailboat and watching him set sail alone on the high seas.   Meri is a fantabulous  writer and mother of 4 boys, 3 of  them have Type 1 Diabetes.

And after I cried through Meri’s post, , I visited my facebook page….one of my “friends” Melinda had posted a link to a beautiful youtube video about one family’s struggle to set a young whale free from fishing nets.

As I watched that video, http://www.youtube.com/watch?v=EBYPlcSD490&feature=share

I couldn’t help but relate Meri’s blog and the Fishbach family’s challenge of freeing the whale, to the challenge that all the men, women and children who have diabetes also struggle with.  Just as this whale was trapped in the fishing net, they are tethered to diabetes.   As new and better treatments are discovered, it cuts away at the net and allows them a small taste of what it’s like to live life without diabetes, but until the entire net is removed they will struggle to manage their disease and will not be truly free.

I hope and pray that I will live to see the day when my grandson and all of you, who so bravely battle day in and day out,  can  live without needles and pumps and tubing and meters and testing blood sugars and highs and lows and complications from this crappy disease and can breach and tail slap and fin slap, (or dance and sing and shout, if you prefer)  just as the whale did when it was freed!

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Filed under Grandchildren, Hope and Health, Uncategorized

A Touching Thank You To to Congressman Royce

For almost a month now, we have been asking our congressmen and senators to sign a letter to the commissioner of the FDA urging them to not delay the outpatient testing of the Artificial Pancreas. Here in Orange County, CA, we have 5 congressional districts and all 5 of them have always presented us with quite a challenge to get them on board with issues concerning diabetes.  As JDRF advocates, many of us have answered JDRF’s call to action and emailed our representatives telling them how important this issue is to us.

Thursday I received word that 2 of our Congressmen had signed the letter, District 40’s Ed Royce and District 46’s Dana Rohrabacher!!!  As the advocate leader for our chapter, I  sent out an email to the  advocates in their respective districts letting them know that their representatives had listened to their request!

One of the advocates, sent a thank you to Ed Royce and cc’d me.  I thought the letter was so beautifully written and held such a powerful message, I asked if it would be alright to share and thankfully she said yes!

Mr. Royce,

Our only daughter has suffered from type 1 diabetes for ten years now;  she is currently 11 years old.  The fact that you signed the letter supporting the artificial pancreas makes a direct difference to our family.  The possibility of this type of management for her diabetes is as close as, I feel, we may get to a cure in her lifetime.  Maybe I have an amazing surprise in store for me one day and there will be a cure, but until then an artificial pancreas is the closest I can hope to have for her.

Your own mother probably thought the same thing about you when you were young, that you would help the world one day.  I am writing today to let you know that you just helped us, with your understanding and concern for our child’s future, and we are forever grateful.

Take care,

Marla Dorsey

If he reads her thank you, I guarantee you he will not forget what she said!

Each one of us can make a difference…Together we will find A Cure..

If you have not yet sent your letter to your Congressman, THE DEADLINE IS TODAY 4/12 Please help us make a difference!  follow this link:   http://takeaction.jdrf.org/apfdacalls

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Filed under Artificial Pancreas, Rohrabacher, Royce, Thank you, Uncategorized