Because I’m still on all the things the Silly Hats & Caps have done to help JDRF and the Type 1 Community, this is one of the first things that we were asked if we could help with by our Orange County Chapter. (You may have seen the picture in one of my earlier posts because the centerpieces were re-used as Promise To Remember Me Leave Behinds too!)
I guess the word had gotten out that some of us Silly Hats were kind of crafty and the Walk Committee was wondering if we could come up with an inexpensive centerpiece for the Walk Kick Off Luncheon! We talked about ideas the next couple of weeks at our Tuesday breakfasts. In one of our shopping excursions a couple of us had seen some flowers made out of material that were pretty cute and decided to make something similar to that.
We also decided we wanted to make them a little more personal. Since at JDRF their “Promise to Remember Me” campaign was in full swing and we are in the process of meeting with members of congress in hopes of putting faces to this crappy disease, we decided to put pictures of some of “our” adults and children living with Type 1 as the center of the flower!
One of our walk sponsors is Ascics shoes and along with giving many pairs to walkers who earned a certain amount of money by a certain date, they had also given the chapter about 30 mis-matched tennis shoes. What a perfect vase!!
Here in Orange County we have quite a few “JDRF Youth Ambassadors”, young kids with Type 1 Diabetes that volunteer to attended various public events, so we used pictures of them and our Children’s Congress kids…and I copied pictures of some of our adults from facebook and since “amazing race” winner and Type 1 Diabetic Nat Strand is also one of our own and our Celebrity Walk Chair this year..her face went on a flower as well!
This awesome group of Silly Hats & Caps then divvied up the work to be done and we had our first project off and running!
- We cut flower centers out of felt in the four walk colors
- We cut hundreds of squares of all different patterns of material (each flower takes 6 4” x 4” squares)
- We cut green leaves
- We hand gathered the material squares and glued them together
- We painted the tennis shoes bright “walk” colors
- We printed, cut out and added the pictures to the flower centers
- Arranged them all into 30 centerpieces and delivered them to the walk committee in plenty of time for the Kick Off Luncheon!
And the finished project looked like this:
Last April I wrote about how some of our friends and I had decided to form a sort of advocacy group called the Silly Hats & Baseball Caps. Well we’ve been meeting for breakfast every Tuesday Morning since then and have we been busy!
With Bob’s surgery and all, I am way behind in filling you in on what we’ve been up to. But it is high time I start sharing some of the things we’ve accomplished!
- First of all we have shortened our name to “Silly Hats & Caps”!
- We have a purpose:
We are trying to make a difference
While having fun
and finding a Cure for Diabetes
- We have a face book page http://www.facebook.com/pages/Silly-Hats-Caps/230127823715355 We would love for you to “like us”!
- We hosted our First Annual Garden Party http://wp.me/p1qABL-iT
- We organized and held our First Annual Peanut Butter & Jelly Golf Tournament http://wp.me/p1qABL-hD
- We held a bowling get together for family and friends with diabetes http://wp.me/p1qABL-ko
- We have made 40 centerpieces for the JDRF Walk Kick Off Luncheon (and are also using a version of them as “leave behinds” for the JDRF Promise to Remember Me meetings with our congressmen http://bit.ly/GA8DWj
- All of us Silly Hats got together for a wonderful Holiday Party
- We met at the beach for a little exercise and a great lunch on the Pier
- We collected favorite recipes from family, friends and JDRF Advocates and put together a Cook Book that we are selling with all proceeds going to JDRF!
- Our local chapter did a write up on us in their monthly newspaper. You can check it out here: http://wp.me/p1qABL-iH
- We volunteer at health fairs and other events sharing about JDRF and the need for a cure for Diabetes
In the next few days I hope to get you all caught up with more of the details of some of these things we have done!
I have to tell you that not only have we, as a group, accomplished so many things, it is wonderful to be able to meet every week with friends and know that you can laugh and cry and hug and share with others just because!! Just like the DOC, but in person!
When Bob was in the hospital…they were all there, right by our side, laughing, chatting, and praying! We are eternally grateful for our wonderful SILLY HATS & CAPS!
I am so excited and proud to be a part of JDRF’s Advocacy Team and the DOC!!
I just received word that our visits, phone calls, emails, and letters to our legislators have paid off this week. We have all been working very hard at getting our Members of Congress to sign onto a letter to FDA Commissioner Hamburg about the need for guidance for artificial pancreas research.
By the time the House letter closed yesterday, 240 Members had signed the letter in the House! That is a House Majority!!
What a fantastic job all of you advocates have done!! THANK YOU SO MUCH for sharing your passion with your representatives…They are OBVIOUSLY LISTENING!!!
With your help they will REMEMBER
Government Day Afternoon Session, March 13, 2011
One of the important campaigns that the JDRF has, that everyone can participate in is the “Promise To Remember Me”. How exciting it is for a young child to get to meet someone in their Government that can help them find a cure!!!
Once a year we schedule appointments with each one of our representatives in all 50 states. We meet personally with the member of Congress from our District, invite as many families as would like to come, tell them our personal diabetes stories and ask them to please remember “US” when voting on important issues affecting diabetes and diabetes research.
Getting that appointment can be a bit of a challenge! Most members require that a constituent make and attend the appointment. That is where the help from advocates though out the US is so important, and another instance of how one person can make a huge difference. Since the meetings are held in each members district, it has to be done when they are “in town”. They are on recess the entire month of August, so that is a perfect time to try to secure a Promise meeting. We start with emailing or faxing our request for a meeting, and then follow-up with phone calls. We make sure the scheduler knows that his constituents will be attending the meeting and we let the scheduler know that we will be checking in periodically to see if that appointment has been made. Even though we are their boss, many of them take a lot of urging to secure those appointments!! And if phone calls and emails aren’t getting that appointment with your Congressman, here are a few more ideas.
- Enlist the help of more people in your district
- Hands deliver a request and/or a drawing from a child
- Contact the legislator’s DC office and enlist their help
- Do google searches for meetings they might be having, have “your group” attend his meeting and ask for a photo with him. He/She might even give you some time!!
If an advocate is lucky enough to secure an appointment, no matter when it is or where it is, TAKE IT! The Grassroots Staff and Leaders will make sure that someone is if you can’t be.
Congresswoman Loretta Sanchez
Promised to Remember Us!
If you would like to participate in this campaign, please click on this link http://promise.jdrf.org/. Last year we held over 430 Promise Meetings and I’m sure that is a big part of why the Special Diabetes Program which funded an additional $150,000,000.00 a year, for the next 2 years, for diabetes research, was approved. We would love to have your help and secure even more this year!