Tag Archives: thank you

Meeting with some of my Hero’s!!

As most of you know..I am a grandmother and a Type 3 (once removed)!  That is..I do not have diabetes, my children do not have diabetes, it is my oldest grandson that was diagnosed with  Type 1 Diabetes!

As any of my friends and family will tell you, I am the definition of a Mother Hen!  Not necessarily a good thing, but none-the-less it is a part of who I am!!   “D” showed up 7 years ago and threatened a member of my family..  “D” did not just come in and  steal a part of my grandson (his pancreas), it took a piece of all of us and forever changed our family!  I HAD TO do what I could to make “D” give it back!

I volunteered with JDRF (Juvenile Diabetes Research Foundation) and started out just participating in the Walk to Cure Diabetes every year.  Then I became a JDRF Advocate and periodically wrote to my congressman asking him to please do what he could to make sure that diabetes research is funded so that a cure can be found as soon as possible.  And 2 years ago I was asked to be the Advocacy Leader.  Saying “no” is a very hard thing for me to say and thank goodness.  Being the JDRF Advocacy Leader I was invited to attend their Government Day in Washington DC.

And so it began….

At this year’s Government Day, I was introduced to the Diabetes Online Community.  Something I didn’t even know existed!  Listening to all of those young men and women talk about the DOC and the support it gives to its members , I knew I had to learn more.  I think it kind of started as a joke, but somehow this old gramma (thanks to Scott and Kerri) left DC that week with my own blog site and twitter account!

The DOC not only offers support to each other that is beyond description, it is so much more.  It is, in almost every sense of the word, FAMILY!  The members of the DOC laugh together, they cry together, they educate each other, they all love unicorns and cupcakes, they advocate, they vent their frustrations without being judged, they are there for each other 24/7, they encourage each other during tough times and they celebrate the victories!

They live their lives, day in and day out, 24/7 with no vacations from “D” and shout “YOU CAN DO THIS!”  with pride!  Each and every one of you living with diabetes are my heroes!

I am so grateful to George http://ninjabetic.squarespace.com

for inviting me to a D meet-up last Saturday. He is going to be speaking to some of our advocates next month about the DOC and I am so excited!

I got to see Scott http://scottsdiabetes.com/

and not only thank him again for setting me up with my own blog and twitter accounts, but I got to get one of his famous “BIG HUGS”!  He is for sure, one of my biggest heroes!!!

And I got to meet Jenny and her husband http://web.me.com/wyldceltic1

who loves Mac’s, her dogs and music!  She definitely has all things “APPLE”!

and last but not least…..

Brad Slaight aka “Meter Boy” http://www.captainglucoseandmeterboy.com/

who kept us laughing the whole time!  (Not to mention he is “half the man he used to be”!)

Thank you all for your courage, commitment and dedication to the DOC and  for making me feel so welcome at your table!

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Filed under Diabetes online Community, Government Day 2011, Grandchildren, JDRF Walk to Cure, Spreading Awareness, Thank you, Uncategorized

Thank you for our Freedom

Please take a moment today to remember all of the men and women who have died protecting  the freedom that most of us take for granted.

TAPS

Day is done,

gone the sun,

From the hills,

from the lake,

From the skies.

All is well,

safely rest,

God is nigh.

Go to sleep,

peaceful sleep,

May the soldier

or sailor,

God keep.

On the land

or the deep,

Safe in sleep.

Love, good night,
Must thou go,
When the day,
And the night
Need thee so?
All is well.
Speedeth all
To their rest.

Fades the light;
And afar
Goeth day,
And the stars
Shineth bright,
Fare thee well;
Day has gone,
Night is on.

Thanks and praise,
For our days,
‘Neath the sun,
Neath the stars,
‘Neath the sky,
As we go,
This we know,
God is nigh.

TO EACH MAN AND WOMAN THAT DIED SERVING OUT COUNTRY
AND THE FAMILIES THEY LEFT BEHIND
THANK YOU FOR YOUR SACRIFICE!

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RED, WHITE AND BLUE

I just received this link and in view of Sunday night’s announcement, I thought this the perfect time to share

http://www.youtube.com/watch?v=wbV3lf1HzQI

! I am so proud to be an American and we are so very blessed to live in the United States of America. Despite all of the problems and things that could be better and need to be changed…there is no better place in the world to live and no better place to raise our children and our grandchildren.

Thank you to all past, present and future servicemen for making our freedom possible!!

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We Did It!!

I am so excited and proud to be a part of JDRF’s Advocacy Team and the DOC!!

I just received word that our visits, phone calls, emails, and letters to our legislators have paid off this week. We have all been working very hard at getting our Members of Congress to sign onto a letter to FDA Commissioner Hamburg about the need for guidance for artificial pancreas research.

By the time the House letter closed yesterday, 240 Members had signed the letter in the House!   That is a House Majority!!

What a fantastic job all of you advocates have done!!  THANK YOU SO MUCH for sharing your passion with your representatives…They are OBVIOUSLY LISTENING!!!

With your help they will  REMEMBER

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Filed under Artificial Pancreas, Diabetes online Community, Government Day 2011, Promise to Remember, Thank you

A Touching Thank You To to Congressman Royce

For almost a month now, we have been asking our congressmen and senators to sign a letter to the commissioner of the FDA urging them to not delay the outpatient testing of the Artificial Pancreas. Here in Orange County, CA, we have 5 congressional districts and all 5 of them have always presented us with quite a challenge to get them on board with issues concerning diabetes.  As JDRF advocates, many of us have answered JDRF’s call to action and emailed our representatives telling them how important this issue is to us.

Thursday I received word that 2 of our Congressmen had signed the letter, District 40’s Ed Royce and District 46’s Dana Rohrabacher!!!  As the advocate leader for our chapter, I  sent out an email to the  advocates in their respective districts letting them know that their representatives had listened to their request!

One of the advocates, sent a thank you to Ed Royce and cc’d me.  I thought the letter was so beautifully written and held such a powerful message, I asked if it would be alright to share and thankfully she said yes!

Mr. Royce,

Our only daughter has suffered from type 1 diabetes for ten years now;  she is currently 11 years old.  The fact that you signed the letter supporting the artificial pancreas makes a direct difference to our family.  The possibility of this type of management for her diabetes is as close as, I feel, we may get to a cure in her lifetime.  Maybe I have an amazing surprise in store for me one day and there will be a cure, but until then an artificial pancreas is the closest I can hope to have for her.

Your own mother probably thought the same thing about you when you were young, that you would help the world one day.  I am writing today to let you know that you just helped us, with your understanding and concern for our child’s future, and we are forever grateful.

Take care,

Marla Dorsey

If he reads her thank you, I guarantee you he will not forget what she said!

Each one of us can make a difference…Together we will find A Cure..

If you have not yet sent your letter to your Congressman, THE DEADLINE IS TODAY 4/12 Please help us make a difference!  follow this link:   http://takeaction.jdrf.org/apfdacalls

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