Tag Archives: type 1

Multi-purpose Kick Off Luncheon Centerpieces

Because I’m still  on all the things the Silly Hats & Caps have done to help JDRF and the Type 1 Community, this is one of the first things that we were asked if we could help with by our Orange County Chapter.   (You may have seen the picture in one of my earlier posts because the centerpieces were re-used as Promise To Remember Me Leave Behinds too!)

I guess the word had gotten out that some of us Silly Hats were kind of crafty and the Walk Committee was wondering if we could come up with an inexpensive centerpiece for the Walk Kick Off Luncheon!  We talked about ideas the next couple of weeks at our Tuesday breakfasts.  In one of our shopping excursions a couple of us had seen some flowers made out of material that were pretty cute and decided to make something similar to that.

We also decided we wanted to make them a little more personal.  Since at JDRF their “Promise to Remember Me” campaign was in full swing and we are in the process of meeting with members of congress in hopes of putting faces to this crappy disease, we decided to put pictures of some of “our” adults and children living with Type 1 as the center of the flower!

One of our walk sponsors is Ascics shoes and along with giving many pairs to walkers who earned a certain amount of money by a certain date, they had also given the chapter about 30 mis-matched tennis shoes.  What a perfect vase!!

Here in Orange County we have quite a few “JDRF Youth Ambassadors”, young kids with Type 1 Diabetes that volunteer to attended various public events, so we used pictures of them and our Children’s Congress kids…and I copied  pictures of some of our adults from facebook and since “amazing race” winner and Type 1 Diabetic Nat Strand is also one of our own and our Celebrity Walk Chair this year..her face went on a flower as well!

This awesome group of Silly Hats & Caps then divvied up the work to be done and we had our first project off and running!

  • We cut flower centers out of felt in the four walk colors
  • We cut hundreds of squares of all different patterns of material (each flower takes 6 4” x 4” squares)
  • We cut green leaves
  • We hand gathered the material squares and glued them together
  • We painted the tennis shoes bright “walk” colors
  • We printed, cut out and added the pictures to the flower centers
  • Arranged them all into 30 centerpieces and delivered them to the walk committee in plenty of time for the Kick Off Luncheon!

And the finished project looked like this:  

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Filed under Promise to Remember, Silly Hats & Caps, Spreading Awareness, Uncategorized

Strike Out Diabetes!

Oh my gosh, have I have a major senior moment!!  As I was writing about all the activities that the Silly Hats and Caps have been up to, I realized that I had totally forgotten to tell about our very first event!

Silly Hats & Caps was created around April of last year.   We had started meeting every Tuesday morning for breakfast and  we had been talking about what we might be able to do to help spread awareness of Diabetes, the need for a cure and how we could bring more people with diabetes together (as you know, there is strength in numbers!).

One morning I got a phone call from my girlfriend and she asked me if I had seen the  latest GROUPON offer!  I hadn’t, but I went to my computer and opened it while I was on the phone with her and there it was!   A great opportunity for a low cost get together, a 2 for 1 bowling package and a really great deal.  So each of us 3 original Silly Hat & Caps couples,  bought 2 groupons and we were on off and running!

From the very beginning of our family’s “D Journey” the name of our family walk team has been “Strike Out Diabetes”.  Strike out as in baseball, but hey…it works for bowling too!

Our local chapter shared the details of our event in their newsletter and posted it on facebook and we, of course, shared the date with our friends and family.

The day finally came…we took our groupons, our helium balloons, some JDRF literature and off to the bowling alley we went!

I’m sorry to say we didn’t have one person other than our 3 families show up for the event…but boy did we have fun!

All three of us Silly Hats & Caps couples had 3 generations represented!!  How very cool is that!! Us grandparents, our children and our grandchildren had a blast!

And in addition to that, what made it all worthwhile????  We’d been bowling about 20 minutes and a man had seen our JDRF balloons and came over to ask about our group.  He approached my daughter in law and said “I saw the balloons..you’re with JDRF? We’re having my son’s birthday party here…my son has Type 1 .”   That was her opening for further dialogue!!  She introduced herself to him and his wife, met the birthday boy and shared with them, her story of living with a child with Type 1 Diabetes.   Robby  met them as well, and told the family how diabetes has not held him back from doing anything he wants, including playing college baseball at a division 1 school!  He and his mom also told them what an important role JDRF has played in our lives since his “D”iagnosis!

Our first official event and we were able to achieve our goal…Have fun while laughing, chatting and helping spread awareness of Diabetes and the need for a cure!  And in addition, we were able to introduce another family to JDRF!!

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Filed under Advocacy, Grandchildren, Silly Hats & Caps, Uncategorized

How Peanut Butter and Jelly are helping T1D!!

Let me start by saying…My husband loves playing GOLF!! However, golf is not a cheap game to play! Most of the courses, at least around us, are way out of our budget. But there are a few less expensive, smaller, older courses around…so in order to do what he loves..he swings his clubs at one of those courses, almost every Wednesday morning!

Because he loves golf in any form, and because JDRF and the research they fund is our best hope for our grandson’s cure, he and his golf buddy and fellow Silly Hat & Cap member have volunteered to work at the JDRF’s annual Golf Tournament for several years!

The JDRF Golf Tournament is always held at a beautiful county club, draws lots of players, includes incredible auction items, and brings in lots of money!  They volunteer not only to help a great cause, but also because they love the ambiance of these courses and playing in the tournament is a little out of their price range!  

Last year after JDRF’s tournament, “the boys” decided they would like to hold a less expensive tournament that they and their buddies could afford and also make a little money for JDRF!!  So the planning began.t

It was going to be a “NO FRILLS” tournament.  One that our friends and family could afford to  participate in.   Instead of a sit down meal, they chose a less expensive brown bag lunch! Instead of a beautiful country club, they made arrangements for the tournament to be held at their favorite  municipal public golf course.    They decided that calling it the

“Peanut Butter and Jelly Charity Golf Tournament” 

was quite fitting!

We also called on a few of our friends and were able to get a Flat Screen TV, Blue Ray DVD Player and other smaller items donated for a raffle!

The PP&J tournament was scheduled for October 26 and thanks to our incredibly amazing friends, even though my husband Bob, was unable to help (he had unplanned surgery to remove a brain tumor September 6) it came together beautifully.

The golf course gave us a good price and provided the sack lunches for a low cost as well.  We ended up with 9 foursomes and ALL of the golfers bought tickets for the raffle in addition to paying  their entry fee!

Friends and family came early the morning of the tournament and helped set up and check everyone in.  One of our friends, who doesn’t golf,  acted as Bob’s  driver and drove him around the course so that even though he couldn’t swing his clubs (doctor’s orders), he could still feel a part of the event!

The tournament went off without a hitch!  The weather was beautiful!  Everyone had a great time and they all asked us to make sure we invite them to next year’s tournament!

And best of all,  we made money while doing something we enjoyed and were able to give a nice check to JDRF, which made all the effort we put into the tournament totally worthwhile!

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Filed under Golf, Silly Hats & Caps, Uncategorized

Our First Silly Hats & Caps Garden Party

We started Silly Hats & Caps with 3 of us girls and our husbands and if we wanted to grow, we needed to figure out a way to reach out and tell others about us and our advocacy!  We knew we would have to hold a fun event that would be free to attend and offer a chance for others to get involved by introducing them to Silly Hats & Caps and JDRF!

One of the girls had been to the garden party of a local Orange County artist who makes beautiful quilted wall hangings http://www.bbquiltscapes.com/.  She told the rest of us about the fun she had attending this party and we decided to meet with the artist and see if she would be willing to show her quilts at our party and allow us to copy of few of her fabulous ideas on hosting a garden party!

She not only agreed to show her quilts and let us use all of her ideas, she made up some neat snap clutch bags with the shape of a JDRF Walk Shoe on the outside and offered to donate a portion of all of her proceeds to JDRF as well!

One of my daughter-in-law’s friends that she has known since elementary school has a beautiful home and yard and offered to let us use it for our garden party!  We were up and running!

In order to keep admission free, we decided to ask everyone to bring their favorite dish and make it a pot luck!  We would provide the drinks and desserts!

So on a beautiful Saturday afternoon in September, we held our First Annual Silly Hats Garden Party!  Hats were not mandatory but we offered  an assortment anyone who cared to wear one!

Barbara was there showing her beautiful wall hangings

and clutch purses!

We had a Reflexologist and a Massage Therapist offering their services for $1 a minute!

We had an incredible variety of absolutely delicious dishes to choose from

and over 40 friends enjoying the food, drink and company of each other!

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Some of our friends even donated raffle items and not only were we able to introduce a new Type 1 family to JDRF at this event, we raised a little money to help with the cure!

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Silly Hats and Caps Update!

Last April I wrote about how some of our friends and I had decided to form a sort of advocacy group called the Silly Hats & Baseball Caps.  Well we’ve been meeting for breakfast every Tuesday Morning since then and have we been busy!

With Bob’s surgery and all, I am way behind in filling you in on what we’ve been up to.  But it is high time I start sharing some of the things we’ve accomplished!

  • First of all we have shortened our name to “Silly Hats & Caps”!
  • We have a purpose:

We are trying to make a difference

While having fun

Chatting, Laughing

and finding a Cure for Diabetes

  • We have a face book page http://www.facebook.com/pages/Silly-Hats-Caps/230127823715355  We would love for you to “like us”!
  • We hosted our First Annual Garden Party  http://wp.me/p1qABL-iT
  • We organized and held our First Annual Peanut Butter & Jelly Golf Tournament  http://wp.me/p1qABL-hD
  • We held a bowling get together for family and friends with diabetes  http://wp.me/p1qABL-ko
  • We have made 40 centerpieces for the JDRF Walk Kick Off Luncheon (and are also using a version of them as “leave behinds” for the JDRF Promise to Remember Me meetings with our congressmen http://bit.ly/GA8DWj
  • All of us Silly Hats got together for a wonderful Holiday Party
  • We met at the beach for a little exercise and a great lunch on the Pier
  • We collected favorite recipes from family, friends and JDRF Advocates and put together a Cook Book that we are selling with all proceeds going to JDRF!
  • Our local chapter did a write up on us in their monthly newspaper.  You can check it out here:  http://wp.me/p1qABL-iH
  • We volunteer at health fairs and other events sharing about JDRF and the need for a cure for Diabetes

In the next few days I hope to get you all caught up with more of the details of some of these things we have done!

I have to tell you that not only have we, as a group, accomplished so many things, it is wonderful to be able to meet every week with friends and know that you can laugh  and cry  and hug and share with others just because!!  Just like the DOC, but in person!

When Bob was in the hospital…they were all there, right by our side, laughing, chatting, and praying!  We are eternally grateful for our wonderful SILLY HATS & CAPS!

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Filed under Advocacy, Government Day 2011, JDRF Walk to Cure, Promise to Remember, Silly hats and Baseball Caps, Spreading Awareness

Set Free

I started my morning reading a beautiful post from Our Diabetic Life in 3D titled ” Diabetes is a Sailboat”.  http://www.ourdiabeticlife.com/2011/07/diabetes-is-sailboat.html  It’s a story about how having a child diagnosed with diabetes is like putting your child in a sailboat and watching him set sail alone on the high seas.   Meri is a fantabulous  writer and mother of 4 boys, 3 of  them have Type 1 Diabetes.

And after I cried through Meri’s post, , I visited my facebook page….one of my “friends” Melinda had posted a link to a beautiful youtube video about one family’s struggle to set a young whale free from fishing nets.

As I watched that video, http://www.youtube.com/watch?v=EBYPlcSD490&feature=share

I couldn’t help but relate Meri’s blog and the Fishbach family’s challenge of freeing the whale, to the challenge that all the men, women and children who have diabetes also struggle with.  Just as this whale was trapped in the fishing net, they are tethered to diabetes.   As new and better treatments are discovered, it cuts away at the net and allows them a small taste of what it’s like to live life without diabetes, but until the entire net is removed they will struggle to manage their disease and will not be truly free.

I hope and pray that I will live to see the day when my grandson and all of you, who so bravely battle day in and day out,  can  live without needles and pumps and tubing and meters and testing blood sugars and highs and lows and complications from this crappy disease and can breach and tail slap and fin slap, (or dance and sing and shout, if you prefer)  just as the whale did when it was freed!

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Filed under Grandchildren, Hope and Health, Uncategorized

Meeting with some of my Hero’s!!

As most of you know..I am a grandmother and a Type 3 (once removed)!  That is..I do not have diabetes, my children do not have diabetes, it is my oldest grandson that was diagnosed with  Type 1 Diabetes!

As any of my friends and family will tell you, I am the definition of a Mother Hen!  Not necessarily a good thing, but none-the-less it is a part of who I am!!   “D” showed up 7 years ago and threatened a member of my family..  “D” did not just come in and  steal a part of my grandson (his pancreas), it took a piece of all of us and forever changed our family!  I HAD TO do what I could to make “D” give it back!

I volunteered with JDRF (Juvenile Diabetes Research Foundation) and started out just participating in the Walk to Cure Diabetes every year.  Then I became a JDRF Advocate and periodically wrote to my congressman asking him to please do what he could to make sure that diabetes research is funded so that a cure can be found as soon as possible.  And 2 years ago I was asked to be the Advocacy Leader.  Saying “no” is a very hard thing for me to say and thank goodness.  Being the JDRF Advocacy Leader I was invited to attend their Government Day in Washington DC.

And so it began….

At this year’s Government Day, I was introduced to the Diabetes Online Community.  Something I didn’t even know existed!  Listening to all of those young men and women talk about the DOC and the support it gives to its members , I knew I had to learn more.  I think it kind of started as a joke, but somehow this old gramma (thanks to Scott and Kerri) left DC that week with my own blog site and twitter account!

The DOC not only offers support to each other that is beyond description, it is so much more.  It is, in almost every sense of the word, FAMILY!  The members of the DOC laugh together, they cry together, they educate each other, they all love unicorns and cupcakes, they advocate, they vent their frustrations without being judged, they are there for each other 24/7, they encourage each other during tough times and they celebrate the victories!

They live their lives, day in and day out, 24/7 with no vacations from “D” and shout “YOU CAN DO THIS!”  with pride!  Each and every one of you living with diabetes are my heroes!

I am so grateful to George http://ninjabetic.squarespace.com

for inviting me to a D meet-up last Saturday. He is going to be speaking to some of our advocates next month about the DOC and I am so excited!

I got to see Scott http://scottsdiabetes.com/

and not only thank him again for setting me up with my own blog and twitter accounts, but I got to get one of his famous “BIG HUGS”!  He is for sure, one of my biggest heroes!!!

And I got to meet Jenny and her husband http://web.me.com/wyldceltic1

who loves Mac’s, her dogs and music!  She definitely has all things “APPLE”!

and last but not least…..

Brad Slaight aka “Meter Boy” http://www.captainglucoseandmeterboy.com/

who kept us laughing the whole time!  (Not to mention he is “half the man he used to be”!)

Thank you all for your courage, commitment and dedication to the DOC and  for making me feel so welcome at your table!

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Filed under Diabetes online Community, Government Day 2011, Grandchildren, JDRF Walk to Cure, Spreading Awareness, Thank you, Uncategorized